I just came across your blog. Saddened to say, I too am a VHL patient with a child and grandchild with VHL. I just started a blog, in honor of my mother who passed away from VHL on August 2, 2010.
I understand your pain...and also admire your courage. I know I can deal with anything that comes my way...but when it's your child...(sigh) it's a different ball game.
1 comment:
I just came across your blog. Saddened to say, I too am a VHL patient with a child and grandchild with VHL. I just started a blog, in honor of my mother who passed away from VHL on August 2, 2010.
I understand your pain...and also admire your courage. I know I can deal with anything that comes my way...but when it's your child...(sigh) it's a different ball game.
I just wanted to say God Bless you and your son.
Best Regards,
Suellen
My blog is: VHL, My Mom and Me
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