Saturday, February 13, 2016


September 20-26, 2014

This is my week home. I have a limited amount of paid time off from work, and I want to save those days in case a return trip to the NIH is needed.  I also did not want to miss Mary's "senior night" with the high school swim team. Dale is with Steven this week.

In a nutshell, this is how the week at the NIH went for Steven:
Monday:  He failed the second swallow tests.  Talks began for the need for a more permanent feeding tube.
Tuesday: Steven developed a fever.  Initial x-rays did not show pneumonia.  Subsequent x-rays did. (There were details about the second, more specialized x-ray, but I have absolutely no recollection of the terms used!)
Wednesday:  Treatment for the pneumonia were underway, and talks were started again for the placement of the more permanent feeding tube.  This quick and easy surgery is being handled by the good doctors in gastroenterology.
Thursday:  The surgery to insert the feeding tube is done.
Friday:  Steven is back on the liqued nutrition (Ensure?).  He's taken off the "drip" method that was first used, and the feeds are now pushed through the end of the tube.

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