Friday, June 24, 2016


     Steven was diagnosed with Von Hippel-Lindau disease (vhl), a genetic cancer disease,  in the spring of 2005. He was sixteen years old at the time and faced his first surgery to remove a brain tumor as a sophomore in high school.
     In the the eleven years since, he has had three more surgeries to remove brain tumors, all related to vhl.  The most recent surgery was in May of 2016. In this time span, a multitude (more than 20) of small brain tumors have appeared on Steven's scans.  He has also been diagnosed and treated for two tumors on his retinas. His kidneys are now also showing the ravishes of this never ending disease.
     Yet through it all he has remained positive, sweet, and never complaining.

     Steven is an adult now. He is making his way in the world in a manner that we all would hope our children would. He is responsible, determined and level headed in all aspects of his adult life. 
     He is, however, saddled with numerous medical bills from his most recent brain surgery. Money raised here will help pay off the bills accrued during this most recent surgery and bills to come in future surgeries.

     Our hope is a cure for Von Hippel-Lindau disease.  Until that day comes, our hope is for help for Steven in paying off the medical bills that he has.  

     Please visit 

and please pass the word!

                                           "Not if but when..."

No comments:


Related Posts with Thumbnails